Understanding Your Options at the End of Life
有很多选择和工具可以帮助你计划和准备生命结束时的医疗保健. 下面提供了一个简短的解释,以便您可以与您的医疗保健提供者进一步探讨这个问题. 了解你对临终关怀的选择将帮助你为你和你的家人做出最好的决定.
Understanding Your Diagnosis and Prognosis
“针对疾病的治疗”或“治愈性治疗”是指试图治愈疾病的治疗. 你有权了解你的医疗保健提供者希望你在接受和不接受针对疾病的治疗的情况下生活多久. This is often referred to as "prognosis." Understanding prognosis is critical to making end of life decisions. 您有权直接询问您的十大赌博平台排行榜对您的预后的看法,无论您是否进行针对性治疗. If you do not understand the doctor's explanation, 你有权要求一个不同的解释,直到你觉得你所有的问题都得到了回答.
Comprehensive pain and symptom management, 对您和您的家人的支持和帮助决策被称为姑息治疗. 姑息治疗可以与疾病导向治疗一起提供,或者它可能成为唯一的护理重点.
- 姑息治疗是为重病患者提供的专门医疗服务. 它侧重于缓解严重疾病的症状和压力. 我们的目标是提高病人和家属的生活质量.
- Palliative care is provided by a specially trained team of doctors, nurses, 社会工作者和其他与病人十大赌博平台排行榜一起工作的专家提供额外的支持. 它适用于任何年龄和严重疾病的任何阶段,并可与治疗一起提供.
- 当你在十大赌博平台排行榜时,姑息治疗可以作为咨询服务提供. For some people, 社区通过诊所和一些家庭护理项目提供缓和治疗. At the end of life, when no disease-targeted therapies are being pursued, palliative care in the community is best provided through hospice.
Source: getpalliativecare.org/whatis.
Accessing Community Services and Hospice Care
At the end of life, when you may no longer wish to continue disease-targeted therapies, hospice can provide palliative care to you in your home. 临终关怀是专门的临终关怀,照顾病人的需要,以提高他们的生活质量. Care is provided by a team of health professionals, skilled in pain and symptom management, providing comfort and care to patients and their entire family. 临终关怀的目标是对绝症患者进行富有同情心的关怀和安慰,而不是治愈. To be eligible for hospice, a doctor must verify a prognosis of six months or less of life, if the patient's illness runs its natural course.
安宁疗护团队成员会在您的家或您住的任何地方照顾您. In addition to scheduled visits, hospice nurses are on-call 24 hours a day, seven days a week, to answer questions or make an emergency visit. During hospice visits, the team provides patients with:
- Pain and symptom management
- 医疗护理,包括医疗用品和设备,以及临终关怀药物
- Counseling about practical issues, including your health care wishes, planning for your financial needs, and tapping benefits or additional support from other agencies
- Help ensuring your physical safety in your living environment
- Personal care, including bathing and dressing when needed
Team members also offer patients and their families:
- Education about end of life
- Caregiver education and training
- Emotional counseling and grief support
- 精神上的安慰,与你的价值观、信仰和信念保持一致
Some signs that you may want to consider hospice care:
- 你已经决定不再希望继续进行针对疾病的治疗
- Your pain and symptoms are beyond what you can or want to tolerate
- You want to focus more on maximizing your quality of life
您可以要求您的医疗保健提供者将您转介到当地的临终关怀机构. 临终关怀将能够讨论在家里或在医疗保健机构护理的当地选择.
Source: Modified from bythebay.org.
Additional resource: Hospice and Palliative Care Basics
Advance Health Care Directives
你有权知道在生命结束时的护理选择. 与您的医疗保健提供者分享您的选择有助于我们更好地照顾您和您的家人. The Advance Health Care Directive Kit and Physician Orders for Life-Sustaining Treatment (POLST) 是否有工具可以帮助您的家人和医疗团队了解对您来说什么是重要的. 这包括拒绝或撤销维持生命治疗的权利.
PREPARE 是一个很好的资源,可以帮助你做出重要的决定,并确保你的愿望得到尊重. PREPARE很容易使用,并且会解释你可能想要考虑的各种决定.
Physician Orders for Life-Sustaining Treatment
A Physician Orders for Life-Sustaining Treatment (POLST) form 是否适用于任何18岁或以上有严重健康问题的成年人. The POLST form accomplishes two major purposes:
- It is portable from one care setting to another.
- It translates the individual's wishes into actual physician orders.
We recommend making a POLST because:
- POLST将您的愿望作为明确的医疗命令传达给您的医疗保健提供者. POLST可能会提高你得到你想要的那种护理的机会,并避免你在生命结束时不想要的东西. We recommend POLST to all our seriously ill clients.
- 您(或您的医疗保健代理人)和您的十大赌博平台排行榜可以使用POLST来撰写清晰具体的医疗命令,表明您在生命结束时想要或不想要哪种类型的维持生命的治疗. 病人和十大赌博平台排行榜都必须在这张亮粉色的表格上签名,以便其他医疗保健专业人员能够尊重这张表格.
- No witnessing or notarization is required.
- 紧急医疗服务(EMS)人员必须遵守POLST, and it remains with you if you are transported between care settings.
UCSF Health medical specialists have reviewed this information. 它仅用于教育目的,并不打算取代您的十大赌博平台排行榜或其他医疗保健提供者的建议. 我们鼓励您与您的供应商讨论您可能遇到的任何问题或疑虑.